Age: 9 y. o.
Residence: Ukraine
Diagnosis: Cloves syndrome
Needs: the medication Rapamune
Funds to raise: EUR 12,970 per year
Aleksandra has a rare genetic disorder and urgently needs the medication Rapamune. Currently, due to the situation in her homeland, her family cannot purchase the medication. This drug is vital for her. One package (100 tablets) lasts for 36 days and costs around €1,000. To cover her needs for a year, €12,970 is required.
Age: 5 y. o.
Residence: Nizhny Novgorod Region, Russia
Diagnosis: Cerebral palsy
Needs: surgery in Georgia
Funds to raise: EUR 14,700
Nikita was born at 26 weeks weighing just 850 grams. He spent a month in intensive care and then in the pathology department.
At 10 months, he was diagnosed with cerebral palsy. Since then, he has been undergoing regular rehabilitation. Nikita’s intellect is fully preserved: he speaks, learns poems and songs, and knows the alphabet and numbers.
Due to a growth spurt, he developed spasticity that caused hip dislocations, necessitating surgery. Nikita is in severe pain, and the operation will help reduce spasticity and realign his joints. The operation at a clinic in Georgia costs €14,700.
Age: 13 y. o.
Residence: Chelyabinsk, Russia
Diagnosis: osteogenic sarcoma
Needs: treatment in Israel
Funds to raise: EUR 63,000
Katya is a cheerful, active, and talented girl who has been studying English and dance since childhood.
This summer, she began complaining about pain in her leg. Tests revealed bone changes and three spots in her lungs. She was hospitalized for a biopsy, with results expected in three weeks. Her parents decided not to wait and flew to Israel, where a diagnosis of osteosarcoma was made within three days.
Katya has begun chemotherapy, which she struggles to endure: constant nausea and vomiting keep her in the hospital. She has also undergone surgery to replace a bone with a prosthesis and now needs to relearn walking. Ahead are four more rounds of chemotherapy. Despite the parents’ efforts to raise funds, the clinic debt is already € 63,000.