We have helped to pay for the treatment. December 2024
Age: 5 y. o.
Residence: Gomel, Belarus
Diagnosis: cerebral palsy, spastic tetraparesis, grade 4 disability, delayed speech and mental development, limb contractures
Needs: treatment in Switzerland
Funds to raise: EUR 12,200
Ksenia is the first and dearly loved child in her family. During birth, she suffered a severe injury, and since then, her family has been fighting the consequences and her challenging diagnosis. She has undergone multiple rehabilitation courses in Belarus, Russia, and Ukraine, each bringing positive results. A significant milestone in her development could be a stem cell transplant, which has shown promising results. Ksenia is currently in a three-month medication preparation period, ending in November 2024. The family requests help for the stem cell transplant at the LIV Hospital in Istanbul, Turkey. The bill amounts to 25,400 euros, and 12,200 euros are still needed.
We have helped to pay for the reabilitation
Age: 3 y. o.
Residence: Mozyr, Belarus
Diagnosis: SMA (spinal muscular atrophy) type 2
Needs:a surgery in USA
Funds to raise: 1,650,500
A year ago, little Elizaveta was diagnosed with SMA. This is a disease when the muscles gradually break down, get atrophied. A child begins to lose the motor skills already acquired, and slowly, one after another, the body functions begin to fail. There is a way to stop this disease: an injection of the drug Zolgensma. It delivers to a body a working copy of the broken gene. This injection has to be done once in a lifetime, but it is necessary to do this until the child reaches the weight of 21 kg. The cost of this injection is huge: EUR 1,650,500.
We have helped to pay for a check-up and treatment (july 2024)
Age: 1 y. о.
Residence: Moscow region, Russia
Diagnosis: retinoblastoma
Needs: to pay for the treatment in Switzerland
Funds to raise: CHF 78,000
During a preventive examination, the girl was found to have a formation that required more thorough inspection. The parents went to an ophthalmology clinic and, unfortunately, have received the confirmation that the formation was a stage 2, group D retinoblastoma. In Russia, Valeria has undergone three courses of chemotherapy and two intravitreal injections into the eye. But the doctors did not give any positive forecasts. The family turned to the Swiss clinic Jules Gonin , where the doctors said they could save both the eye and vision. By December, a part of the treatment was completed. But there is still a long way ahead. The family now needs help to pay the bill of CHF 78,000.
We have helped (june 2024)
Age: 14 y. o.
Residence: Nizhny Novgorod, Russia
Diagnosis: Hodgkin’s lymphoma
Needs: treatment in Turkey
Funds to raise: EUR 60,600
Saba was our care-receiver from 2021 to 2023, when he battled hemophagocytic lymphohistiocytosis (HLH), a rare and severe hematological disease, and epilepsy, the secondary disease to HLH. He has managed to deal with these illnesses. But in January of this year, Saba was diagnosed with cancer.
When Saba was diagnosed with HLH, he was a 4th grade student at the Nizhny Novgorod Orthodox Gymnasium named after Sergius of Radonezh, a co-host of the Conversation with Priest program on the Nizhny Novgorod Orthodox radio Obraz. Since November 2019, he was treated in clinics of Istanbul and spent a total of 11 months in intensive care. Saba has undergone 2 brain shunts, two courses of dialysis to restore his kidneys, 14 courses of plasmapheresis to restore the liver function, drainage of the lungs and abdominal cavity, and the tracheostomy surgery. Saba was intubated twice.
Now he is being treated for Hodgkin’s lymphoma. He has completed 2 courses of chemotherapy. There are still 9 months of treatment ahead. The clinic issued an invoice for the treatment. This is a big additional expense. The family does not have that amount, while it is very important that Saba’s treatment is not interrupted. They require EUR 60,600.
We have helped to pay for the treatment (Oct 2024)
Age: 2 y. o.
Residence: Moscow, Russia
Diagnosis: binocular retinoblastoma
Needs: treatment in Switzerland
Funds to raise: EUR 10,600
At the age of 1 year and 1 month, Alexander was diagnosed with a terrifying condition—cancer of the retinas in both eyes. Thanks to your support last year, we managed to stop the tumor’s growth and save sight in one of Sasha’s eyes. However, retinoblastoma is a highly aggressive disease, especially dangerous in early childhood. To continue his treatment, Alexander regularly undergoes examinations and treatments at the Jules-Gonin clinic in Switzerland. These procedures are very costly, and the family once again needs help. They need to raise 10,600 euros to pay the latest invoice from the clinic.
