Age: 9 y. o.
Residence: Ukraine
Diagnosis: Cloves syndrome
Needs: the medication Rapamune
Funds to raise: EUR 12,970 per year

Aleksandra has a rare genetic disorder and urgently needs the medication Rapamune. Currently, due to the situation in her homeland, her family cannot purchase the medication. This drug is vital for her. One package (100 tablets) lasts for 36 days and costs around €1,000. To cover her needs for a year, €12,970 is required.