Age: 10 y. o.
Residence: Ukraine, Kharkiv Region
Diagnosis: CLOVES Syndrome
Needs: Rapamune medication
Funds to raise: EUR 300

We have helped Sasha and her family multiple times. Alexandra has a rare genetic condition – CLOVES syndrome. She needs to take Rapamune medication on a permanent basis. This time, we need to purchase this for three months. The cost for this medication is 300 euros.